Rare Disease Adovocator
Medical System Researcher
❤Dog ❤ Food ❤sleep
Hi! Nice to meet you
This is Jessie. ☆*:.｡. o(≧▽≦)o .｡.:*☆
Hope You have a nice day!
About Me
• ↖(^ω^)↗
• My Mission
Me and My dog name Juan (it means prepare for the worst while living in the peace cause my dad doesn't like dog haha)
To build an accessible healthcare system where compassion and fairness are structural, so all patients, regardless of their condition, can receive affordable and high-quality healthcare
This shows Details of the inclusive insurance plans ( last plan in Figure 2):
including specific information about the insurance,such as
eligibility requirements, coverage amount, and reimbursement policies.
This is the homepage of RareCare website,
containing a search bar and an introduction
RareCare
Platform
This is the results after searching for “melanoma”: by entering a specific rare disease in the search bar, users can find all inclusive insurance plans that provide reimbursement for that condition.
This is the admin panel of RareCare
This is a space to welcome visitors to the site. Grab their attention with copy that clearly states what the site is about, and add an engaging image or video.
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Medical system
I remember once visiting a hospital for a headache. It was particularly crowded that day, and after nearly four hours of waiting, my number still hadn’t been called.
Around noon, a doctor stepped out of his office and hung up a sign that read, “Lunch break: 12:00–1:00. Please wait patiently.” A man beside me suddenly stood up and shouted, “Lunch break? We’ve been waiting all morning—how can you go eat now?” Others soon joined in, pleading for the doctor to see them first. The doctor hesitated for a moment, then returned to his office to continue calling patients.
At that moment, I felt a strange sadness — perhaps from seeing how exhausted the doctor was, or how desperate the patients looked. Either way, understaffed seemed to describe not just that hospital, but much of China’s healthcare system.
I had long heard the unique medical care in the U.S. During my summer program, I visited Massachusetts General Hospital in Boston and a few small clinics.
Compared with China, the halls were quieter, the facilities newer, and the crowd thinner. I later learned that most Americans first visit a family doctor for initial diagnoses and minor illnesses, who then refers them to specialists if needed.
It reminded me of the “three-tier diagnosis system” back in China — where hospitals of different levels treat illnesses of varying severity. However, in reality, people only believe in hospitals from the highest level. From this perspective, the U.S. seems to have perfected what China is still struggling to achieve.
Of course, some say American doctors are also understaffed. Maybe I just happened to visit on a calm day, but from what I saw, the waiting rooms were unusually empty.
🍗 Jessie's special Coca-Cola Chicken Wings
🧂 Ingredients
Main:
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🐔 Chicken mid-wings — 8–10 pieces (about 500g)
Seasonings:
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🥤 1 can Coca-Cola (500ml, Pepsi recommended)
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🌑 1 tbsp dark soy sauce (5ml)
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🍶 2 tbsp cooking wine (15ml)
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🍯 1 tbsp honey (optional, for extra gloss & sweetness)
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🧂 A pinch of salt (adjust to taste)
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🛢️ Cooking oil as needed
